The objective of this study was to construct and evaluate a questionnaire about the acceptability of advance care planning among the families of end-stage patients with chronic diseases. The reliability and validity of the questionnaire were then evaluated by consulting with 11 experts and testing the questionnaire on 406 family members of patients with end-stage chronic diseases. The overall content validity was 0.96, and the Cronbach’s α coefficient of the questionnaire was 0.904. The questionnaire exhibited good reliability and validity, indicating that it can be used as a research tool to evaluate the acceptance of advance care planning among the families of patients with chronic disease.
| Published in | Clinical Medicine Research (Volume 12, Issue 6) |
| DOI | 10.11648/j.cmr.20231206.11 |
| Page(s) | 103-109 |
| Creative Commons |
This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited. |
| Copyright |
Copyright © The Author(s), 2024. Published by Science Publishing Group |
Advance Care Planning, End Stage, Acceptability, Questionnaire, Reliability, Validity
| [1] | Yang G, Kong L, Zhao W, et al. Emergence of chronic non-communicable diseases in China. The Lancet. 2008; 372 (9650): 1697-1705. doi: 10.1016/S0140-6736(08)61366-5. |
| [2] | Plaisance A, Skrobik Y, Moreau M, Pageau F, Tapp D, Heyland DK. Cultural adaptation of a community-based advance serious illness planning decision aid to the Quebec context involving end-users. Health Expect. 2022; 25 (3): 1016-1028. doi: 10.1111/hex.13447. |
| [3] | Wu X, Li X, Su T, et al. Development and validation of a questionnaire to evaluate the knowledge, attitude, behaviour and care preference of family members of Chinese older adults related to palliative care. Nurs Open. Published online September 17, 2022. doi: 10.1002/nop2.1334. |
| [4] | Ali N, Anthony P, Lim WS, et al. Exploring Differential Perceptions and Barriers to Advance Care Planning in Dementia among Asian Patient-Caregiver Dyads-A Mixed-Methods Study. Int J Environ Res Public Health. 2021; 18 (13): 7150. doi: 10.3390/ijerph18137150. |
| [5] | Munoz Camargo JC, Hernandez-Martinez A, Rodriguez-Almagro J, Parra-Fernandez ML, del Carmen Prado-Laguna M, Martin M. Perceptions of Patients and Their Families Regarding Limitation of Therapeutic Effort in the Intensive Care Unit. J Clin Med. 2021; 10 (21): 4900. doi: 10.3390/jcm10214900. |
| [6] | Tunney RJ, Ziegler FV. Toward a Psychology of Surrogate Decision Making. Perspect Psychol Sci. 2015; 10 (6): 880-885. doi: 10.1177/1745691615598508. |
| [7] | Rietjens J, Korfage I, Taubert M. Advance care planning: the future. BMJ Support Palliat Care. 2021; 11 (1): 89-91. doi: 10.1136/bmjspcare-2020-002304. |
| [8] | Deng R, Zhang J, Chen L, et al. The effectiveness of a modified advance care planning programme. Nurs Ethics. 2020; 27 (7): 1569-1586. doi: 10.1177/0969733020922893. |
| [9] | Deng RL, Duan JZ, Zhang JH, Miao JR, Chen LL, Lee DTF. Advance care planning for frail older people in China: A discussion paper. Nurs Ethics. 2019; 26 (6): 1696-1706. doi: 10.1177/0969733018779177. |
| [10] | Zhang X, Jeong SY, Chan S. Advance care planning for older people in mainland China: An integrative literature review. Int J Older People Nurs. 2021; 16 (6). doi: 10.1111/opn.12409. |
| [11] | Wu XT, Zheng H, Zheng CM, Shi BX. Research progress on role and function of family members in the implementation of advance directives. Chinese Nursing Research. 2021; 35 (09): 1605-1609. |
| [12] | Terwee CB, Bot SDM, de Boer MR, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007; 60 (1): 34-42. doi: 10.1016/j.jclinepi.2006.03.012. |
| [13] | Hsiung YFY. Chinese American’s Readiness for Advance Care Planning. ProQuest, Ann Arbor MI; 2013. Accessed December 4, 2022. https://www.proquest.com/docview/1520325003/5478EDCA6ADA456APQ/1 |
| [14] | Mellinger CD, Hanson TA. Methodological considerations for survey research: Validity, reliability, and quantitative analysis. Ling Antverp New Ser. 2020; 19: 172-190. |
| [15] | Tavakol M, Dennick R. Making sense of Cronbach’s alpha. Int J Med Educ. 2011; 2: 53-55. doi: 10.5116/ijme.4dfb.8dfd. |
| [16] | Wang LY, Lu ZQ, HuY, Gu WY. Attitude toward advance directives for medical care in family members of advanced cancer patients: a qualitative study. Journal of Nursing Science. 2012; 27 (17): 47-50. |
| [17] | Deng RL, Chen LL, Shi BX, et al. Research progress on pre-established medical care programs in the Chinese cultural context. Chinese Journal of Nursing. 2015; 50 (09): 1117-1121. |
| [18] | Wu XT. Study on the attitude and behavior of family members in setting up advance directives for stroke patients. Master. Tianjin Medical University; 2020. doi: 10.27366/d.cnki.gtyku.2020.000642. |
| [19] | Li ZF, Peng CJ. Promoting family-centered Advance Care Planning in China. Chinese Nursing Management. 2019; 19 (03): 326-329. |
| [20] | Özkeskin M, Özden F, Ekmekçi Ö, Yüceyar N. The reliability and validity of the Turkish version of the Telemedicine Satisfaction and Usefulness Questionnaire (TSUQ) and Telemedicine Patient Questionnaire (TPQ) in individuals with multiple sclerosis. Neurol Sci. 2022; 43 (3): 1921-1927. doi: 10.1007/s10072-021-05519-1. |
| [21] | Twycross A, Shields L. Validity and reliability--What’s it all about? Part 1. Validity in quantitative studies. Paediatr Nurs. 2004; 16 (9): 28. doi: 10.7748/paed2004.11.16.9.28.c954. |
| [22] | Twycross A, Shields L. Validity and reliability--what’s it all about? Part 2 reliability in quantitative studies. Paediatr Nurs. 2004; 16 (10): 36. doi: 10.7748/paed2004.12.16.10.36.c886. |
APA Style
Yongqing, S., Yanting, Y., Rui, G., Yongli, W., Wei, L., et al. (2023). Development and Evaluation of a Questionnaire on the Acceptability of Advance Care Planning for the Families of End-Stage Patients with Chronic Diseases. Clinical Medicine Research, 12(6), 103-109. https://doi.org/10.11648/j.cmr.20231206.11
ACS Style
Yongqing, S.; Yanting, Y.; Rui, G.; Yongli, W.; Wei, L., et al. Development and Evaluation of a Questionnaire on the Acceptability of Advance Care Planning for the Families of End-Stage Patients with Chronic Diseases. Clin. Med. Res. 2023, 12(6), 103-109. doi: 10.11648/j.cmr.20231206.11
AMA Style
Yongqing S, Yanting Y, Rui G, Yongli W, Wei L, et al. Development and Evaluation of a Questionnaire on the Acceptability of Advance Care Planning for the Families of End-Stage Patients with Chronic Diseases. Clin Med Res. 2023;12(6):103-109. doi: 10.11648/j.cmr.20231206.11
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Download@article{10.11648/j.cmr.20231206.11,
author = {Shen Yongqing and Yang Yanting and Gao Rui and Wang Yongli and Liu Wei and Zhang Juanjuan and Ji Jingmin and Yao Zhicui and Wang Qi and Suo Tingting and Li Dongli},
title = {Development and Evaluation of a Questionnaire on the Acceptability of Advance Care Planning for the Families of End-Stage Patients with Chronic Diseases},
journal = {Clinical Medicine Research},
volume = {12},
number = {6},
pages = {103-109},
doi = {10.11648/j.cmr.20231206.11},
url = {https://doi.org/10.11648/j.cmr.20231206.11},
eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.cmr.20231206.11},
abstract = {The objective of this study was to construct and evaluate a questionnaire about the acceptability of advance care planning among the families of end-stage patients with chronic diseases. The reliability and validity of the questionnaire were then evaluated by consulting with 11 experts and testing the questionnaire on 406 family members of patients with end-stage chronic diseases. The overall content validity was 0.96, and the Cronbach’s α coefficient of the questionnaire was 0.904. The questionnaire exhibited good reliability and validity, indicating that it can be used as a research tool to evaluate the acceptance of advance care planning among the families of patients with chronic disease.
},
year = {2023}
}
TY - JOUR T1 - Development and Evaluation of a Questionnaire on the Acceptability of Advance Care Planning for the Families of End-Stage Patients with Chronic Diseases AU - Shen Yongqing AU - Yang Yanting AU - Gao Rui AU - Wang Yongli AU - Liu Wei AU - Zhang Juanjuan AU - Ji Jingmin AU - Yao Zhicui AU - Wang Qi AU - Suo Tingting AU - Li Dongli Y1 - 2023/11/29 PY - 2023 N1 - https://doi.org/10.11648/j.cmr.20231206.11 DO - 10.11648/j.cmr.20231206.11 T2 - Clinical Medicine Research JF - Clinical Medicine Research JO - Clinical Medicine Research SP - 103 EP - 109 PB - Science Publishing Group SN - 2326-9057 UR - https://doi.org/10.11648/j.cmr.20231206.11 AB - The objective of this study was to construct and evaluate a questionnaire about the acceptability of advance care planning among the families of end-stage patients with chronic diseases. The reliability and validity of the questionnaire were then evaluated by consulting with 11 experts and testing the questionnaire on 406 family members of patients with end-stage chronic diseases. The overall content validity was 0.96, and the Cronbach’s α coefficient of the questionnaire was 0.904. The questionnaire exhibited good reliability and validity, indicating that it can be used as a research tool to evaluate the acceptance of advance care planning among the families of patients with chronic disease. VL - 12 IS - 6 ER -
Department of Nursing, Hebei University of Chinese Medicine, Shijiazhuang, China; Key Laboratory for Health Care with Chinese Medicine of Hebei Province, Shijiazhuang, China
Department of Nursing, Hebei University of Chinese Medicine, Shijiazhuang, China; Key Laboratory for Health Care with Chinese Medicine of Hebei Province, Shijiazhuang, China
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